When BioCryst asked me to create a mural for them, they gave me a prompt that really made me stop and think: "What would it look like if Netherton Syndrome (NS) was solved?"

As someone who lives with NS, this wasn't just another project. It was a chance to put my deepest hopes onto a canvas. But I’ll be honest—getting to the final image was a journey of its own.

When I was commissioned to paint a mural in North Carolina, I was thrilled. But almost immediately, the plan changed: they didn’t want it painted on-site. They wanted it to be portable so it could move with them if they ever changed locations.

Suddenly, I wasn’t just an artist; I was a logistics manager, a shipping coordinator, and a student of large-scale construction. I knew this would be a challenge, but I also knew that with the kindness of others, I could get it done.